Autism Roundtable

Well, unfortunately, it was pretty much a waste of time. It was basically for us to ask questions—which I actually didn’t really have many to start with and the few I had were answered pretty quick—and then the other people just wouldn’t stop yapping. Sure, there were some good points and some new info muddled in there, but it basically sounded like a mom’s group with everyone comparing and sharing stories (and on top of that, it sounded like everyone was MUCH worse off than me, so the info was stuff that really had no relevance). And at this point I don’t need a mom’s group to commiserate—I understand they might (and they were all thrilled to be out of the house away from their kids), but it just wasn’t what I wanted or needed. I did want to talk to some of the therapy providers that were there, but the yappers were still yapping 30+ minutes after the meeting was scheduled to be over, so I had to leave to get home to my babysitter (and for Owen’s bedtime).

GRRR.

Second school screenings

We had told Owen that he was going to school today and he was going to get to play games…so he was VERY excited!

I didn’t realize (and they didn’t forewarn me) that I wouldn’t be in the room when they were doing the screenings…which is fine (I mean, I won’t always be there!), but it did come as a surprise. They said they would be screening four areas (socialization, fine motor skills, and I forget what else). It only took about 45 minutes and then we were on our way. We won’t find out any results until our April 30th meeting…so stay tuned.

Hearing and vision screening

Today was our first appointment at the school to get Owen’s hearing and vision screened. We were there early, so they had us wait in a nice room where Owen immediately found the cars…and tipped them. 🙂

*On a sidenote, the couch and loveseat was the same exact furniture my mom used to have, just in a slightly different color.

Before the testing even started, they were impressed with him putting the toys away like I asked. 🙂

First up was hearing. Of course he had no problems pointing to the correct pictures on a chart (fire truck, ice cream, basketball, etc.). With the headphone testing, he was supposed to drop the plastic bird in the bucket when he heard the tweet, but he didn’t quite understand…but his eyes would light up and he’d smile so the audiologist knew he was hearing it. 🙂

Then it was over to the nurse where she did a few basic vision tests: naming colors of blocks as she set them out, pointing to a tiny dot on a piece of paper, and following a tiny puff ball as it dropped from her fingers. He did great with everything, and the nurse concluded that his eyesight is 20/30 and 20/40 which she said was average for his age (but the tests didn’t seem very scientific to me though).

I guess this WAS just a screening, and if they noticed anything REALLY off they’d schedule actual testing (which the same goes for Friday’s clinic). But everyone seemed happy with the results…so I guess that’s good.

Developmental Pediatrician’s Report

I just got done reading the Developmental Pediatrician’s report/conclusion/findings on Owen…and…it’s depressing. I know it could be SO much worse, but the medical-speak (and length of some sections) is just scary. And I know a lot of the report was just my answers to the questionnaires they had me fill out, but put it all together and it seems so much worse.

Also, I know the doc can only describe what he saw during those two hours we were there, but to hear him describe Owen’s facial expressions as “BLAND, NOT EXPRESSIVE, NOT COMMUNICATIVE” just kills me…because I don’t see him like that at all…but obviously a professional did.

But then there’s good stuff like a picture vocab test he took rated him at an age equivalent of 6yrs 4mo. and another vocab test was 4yr 7mo.

I seriously have to just keep reminding myself that it could be SO much worse…and whatever the professional findings ARE will allow us to get him the help he needs.

Scheduling Evaluations

Getting Owen seen/evaluated at the schools is not as quick a process as I’d hoped…though part of the issue is that Spring Break is next week.

  1. The first appointment for a brief hearing and vision test is on 4/17. They said the paperwork I have to fill out will take longer than the tests. |-|
  2. The clinic appointment for in-depth testing is on 4/20. I’m guessing this will be similar to the tests Owen took with the first doctor and will take anywhere from 45 minutes to 1.5 hours.
  3. The Referral meeting to go over the test results is 4/30 and should take about an hour. We will find out what they recommend as far as any special education type classes.

I guess in the grand scheme of things, it’s not THAT long, but I was hoping it would be a one-day thing I could schedule next week.

EDITED TO ADD: I also scheduled the appointment for the second opinion…unfortunately, however, it’s not until May 30 (the first opening they had)! So that’s a bit of a bummer…but the only thing I can do is call now and again to see if they have any cancellations.

First blood draw!

Wow. I’m amazed.

Owen was a total ROCK STAR getting his blood drawn for the very first time this morning. :up: I expected the absolute worst…and though it didn’t start on a positive note (he didn’t want to get on the exam table for ANYTHING), it went well!

There were three techs in there (since I had told them it was his first time) and they asked me to hold him down in case he freaked out so I basically just leaned over the table and held his legs and chest…but I distracted him by telling him about the ice cream treat he would get and they distracted him by talking to him about the fish on the walls and he didn’t even feel the needle.

He didn’t flinch.
He didn’t squirm.
He didn’t cry.

In fact, he even pretended to sleep (snoring) when I suggested it. And afterwards, he picked green tape and loved it! He had to hold his arm out for just about everyone to see!

The treat I promised him for being good at the doctor! Not too many ice cream places are open at 9am, so we went to the commissary!

Welcome to autism.

So we finally had Owen’s appointment with the developmental pediatrician to check into his speech delays. We’ve actually been a little concerned since about 18-24 months, but figured he was steadily progressing, so we weren’t THAT worried—and our pediatrician wasn’t super worried, either. But at his 36 month appointment, I finally just bit the bullet and asked the pediatrician for a referral to get Owen checked out—if for nothing else to just ease our minds (if nothing was wrong) or worst case, get started on an action plan (if something was wrong).

Well, we have good news and bad news. I always like the bad new first, so here goes:

The bad news? Owen was diagnosed with autism.
The good news? It’s a very mild form.

Even though I had a tiny inkling in the back of my head going into the appointment…it was still a shock to hear and my head was just spinning from everything the doctor was throwing at me (websites, studies, possible tests, results, terminology, insurance issues, second opinions, yada yada yada). So, really, even now a day later I don’t have a lot of details…

Some points, however (which I’ll probably still muddle, but you’ll get the gist):

The doc said Owen is very intelligent (the tests he took scored him in the normal/average to slightly above average on knowledge), he just has some language issues (things like pointing at what he wants vs. asking for what he wants in a sentence) and possibly even ADHD (how busy he is all the time and his ability to play/play without other interaction).

The doc wants to run a chromosome test (basically just for us to have the knowledge) but he doesn’t anticipate anything horrible since right now, Owen doesn’t fit the profile for any of the severe instances (where he would require more tests).

The official diagnosis is High Functioning Autism. I can (and will) schedule an appointment for a second opinion with a civilian doctor in town, even though I trust and have faith in the doctor we saw. I’ve already started the process to get him enrolled in the EFMP (Exceptional Family Member Program) on base, which qualifies us for additional assistance programs (such as in-home therapy, parenting programs, etc).

The Exceptional Family Member Program (EFMP) is a mandatory enrollment program for all active duty personnel with family members with special needs. The goal of EFMP is to assist military families in managing the dual demands of a Marine Corps career and the special needs of a family member. An exceptional family member includes a family member enrolled in DEERS and MCTFS who possesses a diagnosed physical, intellectual or emotional need that requires specialized medical or educational services. Enrollment in the EFMP program is designed to assist the sponsor with assignment to a duty station where appropriate services necessary to support the family member(s) are available. Installation EFMP Specialists are available to assist sponsors and their family members with the enrollment process, resource, referral, and support before, during and after Permanent Change of Station transitions. Specialists also serve as advocates for EFMP families to ensure access to vital medical, educational and community services. For more information about the EFMP program please contact your installation office.

I’ll have to visit the local elementary school to get him evaluated for an IEP…which, fingers crossed, will allow him to attend preschool there (five minutes from our house). I need to start researching therapists because there’s a waiting list. And I’m sure about a thousand other things I’m forgetting or haven’t thought of/learned yet.

The good thing, however, is that the pediatrician said I’m doing everything right with him (just from watching us interact during the appointment)—so that’s positive at least—and I can just keep keeping on at home.

I have shared the diagnosis with my family and friends and they have all been amazingly supportive. In fact, the comments two friends made really stand out and I want to share them here, so I will remember them forever (and maybe someday I can read them without crying like an emotional pregnant woman):

  • Aaron: Here’s the thing to remember—a diagnosis doesn’t change who Owen is. All it does is attach a label to a collection of his behaviors so that you can get the appropriate assistance to help him continue to develop. He’s still the same child that you’ve been playing with and taking pictures of and sharing stories about that he’s always been.
  • David: That just means he’s even more special!

So, this is sure to be an interesting, frustrating, and eventually rewarding journey… Stay tuned!

IS ANY DOCTOR EVER ON TIME?

OMG. TWO HOURS FOR A FREAKING EYE APPOINTMENT. Sorry, but that is just insane.

11:32 – Arrive early for 12p appointment.

11:47 – Complete paperwork.

12:45 – Assistant does three eye tests (peripheral line wiggle, air puff, cornea measurement) in 10 minutes.

1:15 – Another assistant does basic eye exam (finds new prescription) in 10 minutes.

1:35 – Doc comes in, he decides on a contact, and checks my eyes quickly without and with contacts.

1:55 – Check out.

2:00 – Walk next door to place order for new lenses.

2:10 – On my way home.

:##

Four more months? Ugh.

Would someone just shoot me? Oh my god. I thought I just ate too much last night, so I took Tums and they didn’t really help—and I had a hard time falling asleep. Uh oh.

And this morning I still felt crappy and laid in bed pretty much all day feeling crappy, not really ever sleeping (so as to feel refreshed) but just snoozing off and on. My body started aching so I thought maybe I was getting sick…but it didn’t really feel like that. I showered and that didn’t even help. :'(

I hadn’t eaten much all day (toast with peanut butter at breakfast) so I had chicken broth and a handful of dry cereal and felt a little better, but my stomach still gurgles like I’m hungry…but I’m not.

I’m just really uncomfortable and it’s annoying. And of course I have zero energy.

Four more months?

/cry

Owen’s first dental appointment

Owen did great at his first dentist appointment—not perfect, but they said he was better than some 10 year olds! It took some convincing to get him to sit in the chair, and then more convincing to wear the lead robe for x-rays, and he wanted Backyardigans on the computer monitor—but there was no whining and no tantrums, so I consider it a major success! They even said that x-rays at this point are more to get him used to the idea rather than getting actual usable x-rays, so it was no big deal that they only really got one good one. And they were able to clean all his teeth and the dentist said they all look good! YAY OWEN!

Owen passed age three with flying colors!

Height: 42.5″ (greater than the 100th percentile) — was 39″ at 24mo
Weight: 45# (greater than the 100th percentile) — was 38# at 24mo

Amazingly, Owen got right up on the scale today without complaint!! It took some finagling to get him measured, but it wasn’t too painful, either.

Then we tested his eyes—he had to read symbols off an eye chart (he did fine, but I should have told her he could do the letters just fine). I think if it was just us, he would have done better, but he lost interest pretty quick and after the first two items, I had to resort to “Is that a tree? (No.) Is that a star? (No.) Is that a heart? (Yes.)” Apparently everything was fine, though, because she didn’t tell me otherwise. (I do know that she asked a line that even *I* couldn’t see!)

Then it was into the exam room to get his blood pressure taken. I knew he wouldn’t be thrilled with it, so I told him it was just like mama does at home with the machine (he watches me all the time) but he still wasn’t too sure. The nurse put it on his arm and said it was going to hug him a little—and he wanted nothing to do with it. Until it started squeezing him, then he said “Again, again!” 🙂 The most challenging thing, I think, was taking his temperature—he’s never had to do that before (when he was a baby, it was done rectally) so it took a little bit, but he eventually got it.

The doc checked all the basics and said he seemed great. He also wasn’t too worried about the picky eating thing. We are getting his speech evaluated, though, just to be safe and ease my mind (the doc wasn’t terribly worried, but said we might as well do it because it can’t hurt).

Blood pressure issues

So I’ve been having blood pressure issues lately. Not anything that I have symptoms for, but just measuring a little on the high side (just above normal) when I was in for appointments. They had me come in on a non-appointment day in case it was just a case of White Coat Hypertension…but it was slightly high then, too. So the doc wanted me to watch it and I had to go buy a cuff and take my blood pressure twice a day.

Well, I started to get really freaked out because the readings were really high. Like not just a tad above normal high, but up to crazy scary Stage 2 high (like one day was 190/110 first thing after waking up in the morning). :??: 88| I tried not to get TOO worried, but how could I not?!? I took it religiously for a week, and it was fairly consistently high (anywhere from pre-hypertension to Stage 2 as I said). Of course, the spiked high readings freaked me out more (since I’ve never had blood pressure issues before and these were taken when I was completely and totally relaxed) so I made an appointment with my OB. In the meantime, I went to Walgreens to get my pressure taken, to see if maybe my machine was off—and it wasn’t (so, good and bad).

Of course, the morning of my appointment, my blood pressure in the office was completely normal. Good, but…what the hell? And the doc looked at my logs and said in a blood pressure world of black and white, I’m gray. 😐

My BP at the office was completely normal…but I have the logs of high and crazy high. He definitely didn’t want to put me on BP-lowering meds in case there wasn’t really a problem because then the drugs would lower it too much and that is a problem as well. So for the time being, I’m continuing to monitor it while watching for specific warning signs and trying to drink more water/get more exercise/watch my salt intake. And I get to go back every two weeks instead of four…in addition to my every four weeks trip to the fetal specialist. 😐

He didn’t seem worried so I’ll try not to be as well.

I really liked him, too, so that was good (because on my last visit, I found out that the OB I had seen twice and liked is leaving in three months). And he told me he wants me to see doctors—not midwives, which I had been scheduled to do.

AM I HAVING FUN YET?

More fun thanks to the naval hospital!

>:XX

The naval hospital is seriously on my last nerve. They referred me to a fetal medicine specialist in the next big town (there is a local office, but they have to see me in the main office first). Fine. The office doesn’t allow kids so it was a major issue to try and find a sitter for a weekday morning for four hours. But I did it.

So yesterday I get a call from that office—or what I initally thought was that office—saying they needed to schedule an appointment. Um, I already did…? Come to find out, after much confusion, there are two separate fetal medicine offices…the one I was initally referred to (and scheduled the appointment with) and the one where my OLD fetal medicine doc (from 2008) now worked (which I had been led to believe—by my OB—was the same office, but apparently wasn’t). But I had mentioned to my OB about my original doc, so she made a call to see if my OLD doc could see me, which seemed fine to me since they had my old records. And I thought it was the same office.

But it wasn’t. So I had to make the decision whether to keep my original appointment with the newly referred doc (and hope that further appointments would be in Jacksonville to make my life easier) or take the new doc (which was really my OLD doc) but have to have all appointments in Wilmington (1:20 away). I decided to stick with the originally referred doc, hoping further appointments would be local.

So I thought it was done.

Except just now I get a phone call from the new place (that had called yesterday), saying she called to check things out with the hospital, and…my OB requested the doc/office change and my other appointment had been cancelled. CANCELLED. Which no one ever informed me of, from either the hospital or the fetal medicine clinic. REALLY? Niiiiice. At least the girl I was dealing with (from the new place) was super nice. And I guess as a bonus, kids are allowed at their clinic, so even though I have to drive an hour and 20 minutes, I can take Owen.

But seriously, every single thing I ever have done at the hospital (or through the hospital) seems to get screwed up in some way and it’s never easy and it’s always annoying. This is going to be a LOOOOOONG pregnancy.

Fun at the naval hospital!

You gotta love the naval hospital—I was there for three hours, during which I visited three sections (ultrasound, nurse visit, and lab) for a grand total of 30 minutes (10 minutes each). And I skipped waiting for scripts because that would have added another hour.

FUN! :meh:

But we did have get this nice picture…and an updated due date (July 16):

And now, for a bit of backstory…

Or, why I haven’t been posting much.

We found out I was pregnant on November 13, then called the hospital to see what I had to do to come in and get bloodwork to confirm it. I was told if I had a positive urine test that I could come in. So I waited a few days until it was convenient, and—

** INSERT LONG AND FRUSTRATING STORY WITH THE NAVAL HOSPITAL **

Ugh.

So we made it on base a little before 9am. And since they’re doing construction, one entire parking lot is gone, which means I had to park in the very last row about 200 yards from the hospital. Not a big deal in the grand scheme of things, but super annoying.

So apparently I’m in the Red group, but there’s nothing anywhere noting which section is Red and which is Blue, so I stop at the first Family Practice I see—assuming they’ll tell me if I need to go elsewhere or whatever. So I say I’m there for walk-in bloodwork for a pregnancy and she says “Have you had two positive urine tests here?” Um, no. I told her when I called the appointment line, I was specifically told that as long as I had a positive urine test at home, I could get the bloodwork. She says she’s sorry, but that’s NOT their policy, but they can do a urine test for me. Of course I was pissed. I tried not to be too bitchy, but I asked if there wasn’t anything they could do since 1) I was told something else on the phone and 2) I wanted to get OB involved ASAP since I’ve had a problem pregnancy before and wanted them to do whatever they could to make sure this one worked (and couldn’t they check my records?). (As a sidenote, as I’m talking to her, a coworker was calling [whoever] to tell them about the screw up with the appointment line rep to make sure it didn’t happen again.) So the lady asks if I’m high risk and I say actually, I probably am—they considered me high risk when I had [him] because of my age and thyroid issues, and I’m older now, so…I’m likely to be high risk again. So she doesn’t say anything but makes some motion which TO ME says she’s going to bypass it and let me get the bloodwork. She prints me something and directs me to the lab. I didn’t even think to look at the sheet.

So I get to the lab, take my numbers, and wait. I finally get called, hand him the paperwork, and he asks if I’m prepared to give a urine sample. Wait, what? No. I tell him it’s supposed to be bloodwork. Then I read the sheet and it clearly says urinalysis. Ugh. So the lady apparently led me to believe she was giving me bloodwork but gave me urinalysis and didn’t. even. tell. me. (No, she didn’t specifically tell me I was getting bloodwork, but after the entire discussion about my past and being high-risk, I assumed I was getting bloodwork—and she didn’t say either way.) So I tell him I’ve got to go back. Luckily Owen is a little rock star and just keeps playing with his cars and my phone.

So I go back to the first place and it’s the other girl (who has been making the phone call) and I say “Remember me? I thought this was supposed to be an order for bloodwork.” And then she’s all “Well this isn’t even YOUR clinic. You’re Red. This is Blue.” I ask where the signs are and how I’m supposed to tell—did I miss something?” No, she tells me, we were just doing you a favor so you didn’t have to [go 20 yards farther down the hall to your correct clinic]. Like I was putting her out or something. So off we went.

So we get to the correct RED clinic and have to start from scratch with this lady. I retell the ENTIRE story (Blue clinic visit, appointment phone call, bloodwork that was really urinalysis, failed pregnancy, high risk) and all I get is “Well, our policies are two in-house positive urine tests before bloodwork.” I just wanted to scream HAVE YOU HEARD ANYTHING I’VE BEEN SAYING? To her credit, she said she’d ask a nurse. So I waited and waited. Then she came back and said a nurse should be up in a minute.

In the meantime I asked if I could make an appointment for Owen since he missed his 30-month well-visit and I was pretty sure he needed some vaccine updates. So she tells me he shouldn’t need anything until he’s FOUR and throws a sheet of paper at me with their vaccine schedule. So as I’m trying to read his vaccine chart (via Dropbox on my phone so it’s super tiny and I’m not even sure what I’m looking for!), she says “How about Monday, November 21 at 11?” So she caught me off guard by wanting to make an appointment before I was sure he needed one, then she was all “You’ll have to call to cancel if he doesn’t need it.” And I said, surprised, “Did you schedule it already? I’m still looking to see if he needs it.” And she said No, I’m just waiting on you. All snotty. SERIOUSLY? I finally found that all he needs is a flu shot, so I told her that, thinking I could either take that appointment or they might be able to do it right then. Yeah, no. She tells me they can’t do flu shots until he’s four…but I can go out in town and get one. What? WHAT THE HELL? A military hospital can’t give a toddler a flu shot? If there was some other extenuating circumstance, they certainly didn’t tell me. So now I’m pissed about that on top of everything else.

So then the nurse comes out and signs the form giving me the okay for bloodwork and the snotty lady enters it into the computer and you can tell she’s rolling her eyes while doing it. REALLY? The little old grandma-like lady was a bitch.

The rest of the time there was just fine—the lab techs (who were awesome to Owen) and even waiting for Tom’s scripts. But I am sure my blood pressure was SKY HIGH anyway. (And we were leaving the hospital parking lot 2 1/2 hours after we got there. Ugh.)

And THIS is why I wanted an in-town doctor for both of us. Because I >:XX hate the hospital. Something always pisses me off when I have to go there.

** END OF LONG AND FRUSTRATING STORY WITH THE NAVAL HOSPITAL **

—the following day I got a call that yes, I was pregnant—due July 24, 2012.

So, we had plans for lots of family to be visiting over the upcoming month, but kind of wanted to not tell them because 1) it was still REALLY early (only five weeks) and 2) we wanted to surprise them with the news when we came up for Christmas.

But…my mom and David were the first to visit (the few days before Thanksgiving, on their way to Atlanta to see the Filipeks) and…HOW COULD I NOT TELL MY MOM? 88| So we told them and they were super excited. Unfortunately, after they left and Tom’s mom and brother arrived, I started feeling crappy. Like, seriously crappy. I tried to hide it for a few days—but then it just kept getting worse, so we finally broke down and told them, too. By the end of their week-long visit, I was in pretty bad shape. Incapacitated, even.

I call it the Yucks™ (I suppose it’s morning sickness—which is realy all-day sickness—without any barfing). I had it with Owen, but not nearly this bad or this early. The best I can describe it is that all at once and all day long you feel like:

  1. You just ate a too-big meal.
  2. You are a little hungry.
  3. You have a big ball of nervousness weighing on your chest.
  4. You have a hangover.
  5. You are mentally exhausted.
  6. You are physically exhausted.

I seriously just sat on the couch or in bed like a zombie and wished someone would knock me out until July. Nothing I ate (or didn’t eat) made any difference. No amount of sleep made any difference. I had no energy to do anything simple like post to my blogs, let alone cook or pick up the house. I lost about 8# during the two worst weeks. Thankfully, my dad and Linda were total rock stars, playing with and taking care of Owen, helping put up Christmas decorations, and taking care of laundry, cleaning, and meal prep for the two weeks they were here. I did help out the few hours and or random day when I felt better (YucksLite™ ) but it was few and far between.

We actually momentarily debated NOT going to Michigan for Christmas because I felt so bad…but figured I might as well feel bad where there were other people to help out with Owen. 🙂 I’m so glad we did go, because Owen had a great time staying at Gramma Jean and Grandpa David’s house, visiting with the Len cousins and Schwalm cousins (he now knows the word COUSINS!), and seeing Grandma Marsha and Uncle Rob (Grob) for a bit. I did have a few decent days, but for the most part, I was still dealing with the Yucks™.

So, at this point, seven weeks after we found out…I still feel like crap. Needless to say it’s been a LONG seven months weeks and there have been many, many times I’ve just felt like crying because I’m SO tired of feeling this way. The first trimester is almost over, and I’m keeping my fingers crossed that most of this goes away. Of course, then other fun stuff is bound to appear (like I’m already experiencing gas, bloating, burping, and minor reflux in addition to the Yucks™ ). Of course, my friends all say that being this sick means it’s either a girl—or twins. I’ve disowned the people that have mentioned twins.

Oh! I almost forgot! Another lovely naval hospital story… |-|

After a two-day wait for the general practice office to offically refer me to OB, I had to call and schedule the first ultrasound appointment pretty quickly. Easy, right? The first opening they had was like December 21. I told her that there was a 99% chance we’d be on vacation then, so if there was ANY way to get it even a few days earlier, that would be great. Nothing doing, no way no how, that’s the absolute earliest you can come in. Now, I understand they have to wait a certain number of weeks to be able to get a heartbeat, but I really don’t think a few days earlier would be the breaking point (it wasn’t like I was asking for two weeks early or something). But she does tell me that if I do find out for sure that we aren’t going to be here, to call back and they will try to get me in earlier. Wait, what? Just a minute ago it was no way, no how…but now you’re telling me to call back and you’ll try to get me in? Ugh. So, fine. So when we had decided we were going to Michigan (granted, only about a week before the scheduled appointment), I called and told the lady what I wanted (and I know it was the same lady—I recognized the voice) she immediately became snotty and said “WHO TOLD YOU THAT?” I wanted to say “It was you—I remember you” but I didn’t. Yeah, they can’t get me in that soon at all and wouldn’t even take my name down for a cancellation. The next available appointment was almost three weeks later. Really? Oh, and they’re only in the morning. And I can’t bring Owen with me. And suddenly she tells me that I need to be prepared to be there for 2-3 hours for labwork and a visit with the nurse. WHAT? Since when? You’d think they’d tell me all this the FIRST time I called to schedule the appointment. Breathe. Breathe. Breathe. So I had no ultrasound to show anyone at Christmas. And I’m keeping my fingers crossed that everything goes well Friday…though it’s the naval hospital, so I’m sure something will piss me off.

So…thus far…this hasn’t been an enjoyable or exciting experience for me. I’m really hoping things get better.

Golf course shenanigans!

While Tom and Marsha and Rob were out shopping this morning, Owen and I went for a walk to the golf course… (Sidenote: This is the only 3T outfit he has that still fits.)

“Machine!”

“Red! White! Yellow! Blue!” (Naming the colors on the sign.)

Hiding!

Another machine!

We were just about to head home when Owen started telling me his foot hurt. He hates wearing shoes so I thought he was just fooling me. But I unbuckled the sandal strap and felt around and didn’t see/feel anything that would be poking him so put it back on. He kept saying it hurt and I kept telling him nothing was wrong. He kept trying to get the shoe off himself so I finally took off the whole shoe…where I then saw a smashed red ant and three tiny bites. 🙁 Of course I felt like a horrible mom. Luckily when the shoes came off and the bug bite cream went on, he was totally fine.

Tricare Tribulations

Seriously, I could just scream or bust out crying from dealing with this. I hate bureaucracy and I hate inane rules, and Tricare has it all right now.

As with most insurance companies (I’m guessing) you need to select a Primary Care Manager, or PCM. When we last lived here, there was a Tricare clinic less than five minutes from my office, so that’s where I chose my PCM. I did it all online and it was easy peasy. In Michigan, we had a different form of Tricare (called Prime Remote) which basically allowed us to pick “civilian” providers since we weren’t near a Military Treatment Facility (MTF). Again, easy peasy and no issues.

So fast forward to moving back here and needing to pick PCMs again. I should have done it as soon as we got here, but things happen and you know how things slip your mind if you don’t NEED to go to a doctor. But Owen was past due for his 30-month wellness appointment and then I threw my back out, so I figured I had to get it done.

And that’s when the nightmare started.

Actually, it wasn’t a nightmare at first. We wanted to be seen in town (by a Tricare provider) so I searched and yes, the clinic I had gone to was still listed and the pediatrician (that had been recommended to me by a friend) was listed, but I couldn’t seem to access the necessary website to make my selection. Turns out, we had been automatically assigned a PCM so needed a waiver from the Tricare office to change providers/be seen in town, but I was assured (from a friend) that it wouldn’t be an issue and her waiver was granted basically without a second glance. Cool.

So Tom was busy at work (of course) and it took a week or so for him to visit that office to get the form and bring it home for me. I did a website search again to make sure the docs I wanted were still listed, filled out the form along with the reason for my request (base is too far away—30+ minutes usually, and the docs we wanted were 15) and sent it in with Tom.

Aaaaaand, this is where the nightmare actually begins.

I mistakenly put we’re 5 miles from the base (instead of 15—I forgot the 1—maybe I was thinking of the docs we WANTED to go to which are 5 miles away) but when the lady noticed and made a comment about that not being far away, Tom explained that we’re actually 15 miles/30+ minutes away. She agreed we should be going to a doc in town—and was actually stunned that we had been assigned to the base because they’re full. Fine. We’re good to go.

Or so we thought.

Tom got the denial email today saying we’re too close to base (the Naval Hospital is our MTF). What? SERIOUSLY? So Tom called and explained (and rehashed the explanatory conversation he had with the rep when he turned in the form) and oh, THEIR system says we’re 28 minutes from base, and the cutoff is 30, and they don’t count traffic—which of course can add another 20-30 MINUTES if you’re trying to get through the front gate during morning rush hour.

He questioned the decision, and they basically had the attitude of tough shit, it’s mandatory that you’re seen on base, you get what you get, and don’t bother calling again because we’re not going to change it. End of story. She did say that the docs we listed aren’t even in their system—which, WHAT?—I just looked them up three days before! So I told Tom that I’d print out the damn docs off the website and send them in with him as proof—but guess what? The entire site has been redesigned and the stuff I found last week is no longer there. OF COURSE. Searching for providers in our area brings up NOTHING because it’s apparently now MANDATORY that we are seen on base. >:XX

So I call the main Tricare people (Health Net Federal Services), and long story short, she tells me since we’re right on the cusp (28 minutes vs. 30 minutes) they really should give us the waiver, but it IS up to the individual office…and that we need to call that office and ask how to file an appeal. Yeah, it sounds good, but with the severe attitude Tom got when he called, I don’t see an appeal going over well. And he wasn’t exactly in an agreeable mood.

Yes, I know I should be happy that we even have insurance—and I get that. But it really should be easier than this.

So THEN I figured well, Owen needs his appointment and I will need more meds soon (for my back) so I guess I’ll just suck it up and make an appointment for both of us while we figure out if we can appeal the waiver. I know you can make appointments online, but I couldn’t login—and had no idea why.

Which started an avalanche of frustration about all the >:XX Tricare and Tricare-related websites. I know for a fact I’ve registered on these sites, but my logins aren’t working and you can’t just request your password be sent or even reset—since it’s medical stuff with extreme privacy laws, you have to request a reset and expect a security code in the mail within 10 days. Oh, and all three of us can’t be on the same account on one site—everyone over 18 has to have their own account. So Owen is under Tom’s, and I have my own—WHICH I KNOW I >:XX SET UP but they seem to think all my information is invalid and can’t find me…but if I try to register again, it tells me I already have an account. And another site, in order to get a login, I either need a DOD access card or a MyPay account (which I used to have Tom’s login until their changed their requirements and now it’s some unintelligible and random string of gibberish that I can apparently never type in correctly) or I can request my own login, but in order to request that login, you need one of the aforementioned types of logins…that I can’t get because I don’t have the login?!?!?

>:XX :crazy: :## :down:

So yes I can actually make a phone call to get an appointment, but by the time I had dealt with all that >:XX nonsense, I was done. D. O. N. E. DONE.

I can deal with a lot of stuff rationally (believe it or not), but this shit just drives me >:XX bonkers.

The Balsamic Incident

That was a new unopened bottle of balsamic vinegar. I couldn’t bend fast enough to catch it (I tried, which of course made my back worse). I had no idea how to even BEGIN cleaning it up—I was right in the middle of making Owen’s breakfast and he was already in his high chair—and with my back, I could barely move.

Ugh.

I stepped out carefully, put shoes on, put shoes on Owen, threw some towels down to start sopping up the mess, and made Owen’s PB&J.

And let me just say that while the smell of a little bit of balsamic is nice, the smell of an entire bottle all over your kitchen floor is completely gag-inducing.

Ugh.

I popped a pain pill and got to work. Down on my hands and knees picking up glass pieces, sopping up the mess with towels and paper towels, using a squeegee to try and move the pools towards the towels and corral the teeny shards of glass that were all over (the grout was the worst, because the squeegee didn’t work on that and the glass liked to hide there). I hung the floor mats on the deck. I Swiffered the floor three times then realized I still needed to sop up more with paper towels. And then I realized the balsamic was also IN the pantry, so then I was on my hands and knees INSIDE the tiny pantry trying to clean. And trying to shove paper towels against the floorboards because it was behind there, too.

Ugh.

It took me a good 25 minutes to clean it all up, during which Owen finished his breakfast and just played with some toys that were on the table. I swear, he can be a rock star when he wants to be.

Owen really is a good boy!

It’s times like this [when I am fairly incapacitated] that I am so very thankful for Owen. For two days straight, I’ve been in bed laying down (pretty much all day) and he just hangs out with me, playing with his cars, playing puzzles on the iPad, and watching TV. No complaining, no whining about wanting to go anywhere else in the house, no running off for long periods of time, etc.

I just wish I could take a little nap…but I’m not going to push my luck. 🙂

Owen just scared the crap out of me.

He has never really been terribly inquisitive—like pulling things out of cupboards, opening kitchen drawers, getting into stuff under the sink, etc.—so we honestly haven’t really worried too much about putting things away.

So just now, we were upstairs and I was in the bedroom and he was out and about and came into the room rubbing his eyes and his face was all wet and my first thought was he had been crying and was snotty—but he wasn’t crying. And then I got closer and smelled chemicals on him. 88|

I immediately tossed him in the tub and rinsed his face and head and tried to do my best with his eyes.

Yeah. He got into the oxyclean spray carpet cleaner. Apparently he likes to play with triggers now |-| and grabbed it off the floor and was playing with the trigger and sprayed himself in the face.

Fortunately, he seemed to be fine. I kept a watch on his eyes, and they didn’t even get pink (let alone red) so I think it mostly just got on his face.

So tonight—and from now on—we make sure everything is put away.

Whoa. This was a surprise!

Imagine waking up in the morning, lazing about, showering, then going to put your contacts in and seeing this?! 😮

I had NEVER had this happen before! And I didn’t remember sneezing or exerting myself in any way…so I must have just rubbed my eye the wrong way. Yuck. At least it doesn’t hurt or itch or affect my vision in any way. And from friends who’ve had the same thing, it will be sticking around for about two weeks. 🙁

I need to stay out of the kitchen.

I should stay out of the kitchen for awhile. Within the past few days, I have:

  • grated my thumb (while grating cheese for mac and cheese).
  • stabbed myself in the palm (by simply holding and walking with a knife).
  • accidentally dumped a cup of syrup on my pancakes.
  • grabbed a just-out-of-the-oven pan bare-handed (after I had successfully taken it out of the oven with potholders).

Weight loss!

If you may recall, at Owen’s 24-month check-up, the doctor was a little concerned about his weight, and mentioned that she would like to see him lose a few pounds. I thought that was pure lunacy and didn’t worry about it at all—and just thought she was crazy. :crazy:

So my cousin’s kids were here today and I swear Owen felt heavier than the two older ones (their mom said the 7yo weighs about 45# and the 5yo weighs about 28#) so I wanted to weigh Owen just to see. I knew he was more than 28# but I thought he might be close to the 45#, seeing as how he was 38# in February.

So imagine our total surprise when he weighed 36#—which means he’s lost 2# since February! (His pediatrician would be thrilled. :meh:) He’s apparently losing some of his baby fat (which we’ve actually been noticing) and is getting more lanky.

I guess a height measurement is next on the list.